Wednesday, May 30, 2012

oh so far


I need to take a minute for a Matthew update. I'd have previously titled something like this post an "OT update" but we no longer need therapy. We are no longer bound by chains that bind us.... we've made such progress. We still have a long way to go. There are still tears and trials, but my we've made such progress...

If someone looked at Matthew today… and saw him eating pepperoni and sausage pizza with carrots in ranch and with strawberry cheesecake pie for dessert… that person would never believe that two years ago… he was only eating bacon and croutons and granola bars each and every day for each and every meal.   We no longer bring “Matthew’s food” with us when we go places.  We know we can order chicken nuggets or fingers wherever we go. We know we can find potatoes or fries most any place.  We know that he’ll at least TRY something because we’ve established good habits.

I am not sure I can even list all the new foods that Matthew can eat at this point. He’s come so so far. So far.
We’ve started something a while back called “Try it Tuesday” and the kids (both Mark and Matthew) understand that we’re going to try something new and you can get your “own” food when you’ve tried it.  Gagging doesn’t get you out of trying it. You get to try another bite.  Matthew has become a pro at this. He doesn’t like it. But we’ve past by the crying, gagging, whining about it for the most part.  On some past Try it Tuesdays, he’s tried grits (we’ve done that a couple times actually, be/c breakfast is a fun dinner), we’ve tried different kinds of pasta dinners, chicken cooked with rice, Chinese fried rice and chicken, or it might be a new vegetable, etc…   he doesn’t have to eat the whole plate… just one bite. And we’re learning what he likes and what he doesn’t like this way. It’s been a good adventure.  And my favorite and best part of dinner is when I don’t have to make multiple meals… we can all eat pancakes, eggs and bacon. we can all eat spaghetti and crescent rolls. we can all eat paprika chicken with corn and potatoes. THIS has been the most rewarding part—making our dinners a happy time without challenge or fuss. He can eat spaghetti without too much trouble. Still doesn’t like mac and cheese, but okay. He can eat almonds, peanuts, pecans, walnuts… He can eat a strawberry or two without moaning. He still shakes when he eats blueberries but I think that’s just a game at this point now. He can eat about five blueberries. Main fruits are still grapes, apples and bananas. He’s okay with pears and melon but doesn’t prefer them. Same for mandarin orange slices.   He can eat a bite of lettuce (one leaf) dipped in ranch – that’s actually our next project to see if we can build him up to three bites and then five and then a small salad!  We’re still only at one bite of peas and one green bean at a time, but that’s something. He does fine with corn. He also doesn’t like cooked carrot—again mushy—but does great with raw.  He eats cornbread, rolls, biscuits, muffins. He eats cheese… he even ate a grilled cheese about two weeks ago for the first time!!! He is more willing to try foods now. It’s amazing. It's just amazing. Matthew has come so far. oh so far. 

Thank you Lord Jesus, for bringing Matthew -- and all of us-- out of the bondage we were in because of food. Thank you for rescuing us from that place of hard ache and torture. Thank you for growing us all. Thank you for the trials Lord, and for bringing us to the new morning through the storm. 

This morning, Matthew was singing "Oh no You never let go, through the calm and through the storm. Oh no You never let go in every high and every low. Oh no You never let go!"  .... How true that is. How blessed we are. What a peace You Oh Lord have given us that we've come oh so far.

6 comments:

Anonymous said...

Kate,
I read your blog occasionally. I actually don't remember how I stumbled upon your blog but I read it occasionally. My son has major sensory food issues and only eats chicken nuggets, cheez its and gold fish. We can't afford OT and I'm not making alot of progress with my son. How have you been able to make such progress? I don't really know what to do anymore with my son.

Kate said...

Anonymous, right now things are crazy nuts, but I would love to chat with you about this more. Baby Baby Baby steps are the only thing I can suggest...

How old is your son?

We started OT with Matthew when he was 4. And I will say it was horrible. It was so awful when we started. But over the past two years (he'll be six this month) we've been able to apply the tools she gave us and so far, they are working! There is hope! It feels like there isn't any, I do know that. I remember well when Matthew only ate bacon and croutons and granola bars. Period. So I feel you with the chicken and the nuggets.

Work on ONE "new" food at a time. Start slowly with just being able to get your son to touch the new food. Apple, carrot, whatever... and then kiss it after he can touch it. and then lick it after he can kiss it. Seems slow and painful. It will be. But once he can lick it without gagging,whining,fussing... then put the food in the mouth and spit it out, then put the food in the mouth and chew and spit out before you ever can get him to chew and swallow. It is a slow process. And I'm talking this may take weeks for one food item. (It was that way for us with chicken, bread, carrots, certain fruit... ) and then once he can chew and swallow one bite. you move on to two bites and then three and then five and then ten.... SLOW SLOW SLOW....

Anonymous said...

My son is 6 years old. He actually is on the very low spectrum for autism so his issues are sensory stemming from his autism. I will try this - thank you soooooo very much!

Kate said...

I would also suggest to make a chart... a big chart. And have boxes for each thing you're asking him to do. Let's say it's a raw carrot (and in order to get Matthew to eat carrots, he had to dip them in peanut butter. gross but whatever got it in, right?) ... so anyhow, make a box for:

Monday touch carrot to lips no whining. Then if he does that he gets a sticker.
Tuesday : same thing.
Wed same thing.
Thurs same thing.
Fri same thing.
Sat lick carrot: gets sticker.
Sun same thing.
Mon same thing
Tues same thing
Wed same thing
Thurs: bite carrot and spit it out. no whining = sticker
Fri same thing
Sat same thing.

So all the while you're working on one food, one task each day. And you know your sun, pick a time that is good for him to focus and go slow slow slow. In about a month, you should be able to expect a bite chewed and swallowd, but really it might take that long.

Update me... I'll be cheering for you and your son. :)

Anonymous said...

I definitely will. Thank you very much Kate. I appreciate your help. Today is his last day of school so we have all summer to work on this!

Kate said...

Slow slow slow. It will seem like SNAIL PACE. But I'm learning that as much as that was a HORRIBLE time... We are seeing results now. And *that* is worth the pain and tears and trials to get THROUGH IT!

I'm cheering for you and your sweet son this summer!